Wednesday, May 7, 2014

Solstice Study

"The Pain You Feel Is Real, Even If You Can't See It."


That is the slogan for a commercial I saw on Tuesday, while my mom was sleeping and getting her chemo meds. I was watching tv when a commercial came on about endometriosis.  The fact that there is any commercial made me smile.  This one is about a new clinical trial but at least it gives a name to a disease people need more information about and also identified symptoms, which I think is greatly important for general knowledge.  The study is for the Solstice Study. If anyone is interested, click HERE

As I have stated before, I would LOVE for these studies to be successful.  I am so happy that they are available and I would love to sign up, but I am not willing to take the 50% chance of receiving a placebo, while still having to stop all hormone treatment.  I hope there are women who are at a point where they are able to participate because I think research is incredibly important for endometriosis.  I still can't wrap my head around the fact that this disease can only be concretely diagnosed via surgery.  It just seems crazy.  If I had an unlimited supply of money, my first priority would be better diagnostic tools and my second would be what this study is trying to do... find a better way to treat pain.  So I say to everyone involved in this study: GOOD LUCK!!! 

2 comments:

  1. I would be interested to know of there are certain hospitals or universities that are leaders in this research field. -C.

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    1. That's a great question. I have not heard of any but it's something I might ask my doctor. I do know that my surgeon at Jefferson is on of the top in his field but that would unlikely overlap with research.

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